You want to leave money to your child, but worry an inheritance could affect their disability benefits. Perhaps a loved one is receiving a settlement, and you are unsure where the money should go. Or you are wondering who will manage their finances when you can no longer help.
A special needs trust can provide a plan for these situations.
A special needs trust holds and manages money for a person with a disability while helping preserve eligibility for benefits such as Supplemental Security Income (SSI) and Medi-Cal. To receive that treatment, the trust must meet the applicable rules and be administered correctly.
For families in Carlsbad, CA, understanding how the arrangement works is a useful first step toward planning for a loved one’s future.
How a Special Needs Trust Works
The person receiving support is called the beneficiary. The trustee manages the trust’s assets and makes payments according to its instructions and applicable benefit rules.
Rather than leaving money directly to the beneficiary, a family member can arrange for it to pass into the trust. The trustee then uses those funds to support the beneficiary’s needs.
The details matter. A trust that gives the beneficiary unrestricted access to its money may be treated differently for benefits purposes. Simply naming an account a “special needs trust” does not protect it.
Situations That Make Planning Important
Families often consider a special needs trust when:
- Preparing a will or living trust. Parents want to provide an inheritance without unintentionally disrupting a child’s benefits.
- Receiving a personal injury settlement. A person with a disability needs a plan for funds that will belong to them.
- Coordinating gifts from relatives. Grandparents or other family members want to contribute toward future support.
- Planning for aging caregivers. A parent wants clear instructions for managing money after the parent’s illness or death.
- Naming life insurance beneficiaries. A family wants insurance proceeds directed into an appropriate trust.
For example, a parent might want to leave funds for transportation, therapy, and activities while preserving a child’s access to needs-based assistance. Planning before the inheritance is received can avoid a more complicated situation later.
Eligibility Depends on the Type of Trust
Special needs trusts generally serve people with disabilities who receive—or may later need—benefits with financial eligibility requirements. A diagnosis alone does not determine whether a particular arrangement qualifies.
The source of the money is especially important.
A third-party special needs trust uses assets belonging to someone else, such as a parent or grandparent. It is commonly considered when planning gifts or an inheritance.
A first-party special needs trust uses the beneficiary’s own assets, such as settlement proceeds or an inheritance already received. The individual first-party trust exception generally requires the beneficiary to be disabled and under age 65 when the trust is established and funded. It also requires a Medicaid reimbursement provision. Other arrangements, including pooled trusts, have different requirements.
The under-65 requirement should not be applied automatically to every special needs trust. An attorney can identify which rules fit your family’s circumstances.
Expenses a Special Needs Trust Can Help Pay
Depending on its terms and the beneficiary’s benefits, a trust may pay for expenses such as:
- Medical and dental care not otherwise covered.
- Therapy, personal assistance, and supportive services.
- Education, training, and technology.
- Transportation.
- Recreation and activities that improve daily life.
How a payment is made can affect its treatment. Cash paid directly to someone receiving SSI generally counts as income. Trust payments for shelter can also reduce SSI, even when the trust itself is excluded as a resource. The trustee should review benefit consequences before making distributions.
This does not mean the trust can never help with housing. It means the decision should account for both the person’s needs and the effect on benefits.
California Rules Require Particular Attention
Medi-Cal is California’s Medicaid program. Its eligibility rules differ from SSI, so a family should review each benefit separately.
California reinstated asset limits for certain Medi-Cal programs beginning January 1, 2026. That makes it important to confirm which Medi-Cal category your loved one uses rather than assume that all coverage has the same financial requirements.
Certain first-party special needs trusts also require repayment to Medi-Cal from remaining funds after the beneficiary’s death. California may require notices to the Department of Health Care Services, and court-established trusts can involve additional procedures. These requirements do not apply identically to every trust.
Setting Up the Trust Starts With Your Family’s Needs
You do not need to arrive at an attorney’s office knowing which trust to choose. Start by gathering information about the beneficiary’s benefits, assets, expected gifts or settlements, and ongoing expenses.
The next steps generally include:
- Identifying the source of the funds. This helps determine the appropriate trust structure.
- Choosing a trustee and successor. Consider their ability to manage records, understand benefit rules, and respond to the beneficiary’s needs.
- Preparing the legal documents. The terms should address the person’s circumstances and applicable requirements.
- Coordinating funding. Wills, trusts, account designations, and insurance beneficiaries need to work together.
- Planning for administration. The trustee needs guidance about payments, reporting, and recordkeeping.
A letter describing routines, preferences, care providers, and personal goals can also help a future trustee understand the person behind the paperwork.
Create a Clearer Plan for Your Loved One
A special needs trust cannot remove every uncertainty, but it can address practical concerns: who will manage the money, how it may support your loved one, and how benefits will be considered.
The Law Office of Chris C. Clauson helps families in Carlsbad and throughout San Diego County evaluate special needs trust planning, select trustees, and prepare documents suited to their goals.
Contact the Law Office of Chris C. Clauson for a free consultation. Bring your questions and your family’s concerns so you can begin building a plan you understand.